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Michael J. Astrue, Commissioner of Social Security |
Stephen Groft, Director, Pharm. D., NIH Office of Rare Diseases |
Frank Cristaudo, Chief Administrative Law Judge |
David Rust, Acting Deputy Commissioner for Disability and Income Security Programs |
Kathy Hunter, Founder & President, International Rett Syndrome Association |
Craig Polhemus, Executive Director, Prader-Willi Syndrome Association |
Vicky Whittemore, Ph.D., Vice President & Science Director, Tuberous Sclerosis Alliance |
Suzanne R. Pattee, J.D., Vice President of Regulatory & Patient Affairs, Cystic Fibrosis Foundation |
Dr. Michael P. Boyle, Director, Johns Hopkins Adult Cystic Fibrosis Program |
Barbara T. Boyle, National Executive Director & CEO, Huntington's Disease Society of America |
Pat Furlong, President, Parent Project Muscular Dystrophy |
Shelley Bowen, President, Barth Syndrome Foundation |
Josephine Grima, Ph.D., Vice President of Research & Legislative Affairs, National Marfan Foundation |
Amy K. Kirk, MSW, Coordinator of Family Services, Batten Disease Support and Research Association |
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