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Michael J. Astrue, Commissioner of Social Security |

Stephen Groft, Director, Pharm. D., NIH Office of Rare Diseases |

Frank Cristaudo, Chief Administrative Law Judge |

David Rust, Acting Deputy Commissioner for Disability and Income Security Programs |
 Kathy Hunter, Founder & President, International Rett Syndrome Association |

Craig Polhemus, Executive Director, Prader-Willi Syndrome Association |
 Vicky Whittemore, Ph.D., Vice President & Science Director, Tuberous Sclerosis Alliance |
 Suzanne R. Pattee, J.D., Vice President of Regulatory & Patient Affairs, Cystic Fibrosis Foundation |

Dr. Michael P. Boyle, Director, Johns Hopkins Adult Cystic Fibrosis Program |

Barbara T. Boyle, National Executive Director & CEO, Huntington's Disease Society of America |

Pat Furlong, President, Parent Project Muscular Dystrophy |

Shelley Bowen, President, Barth Syndrome Foundation |

Josephine Grima, Ph.D., Vice President of Research & Legislative Affairs, National Marfan Foundation |

Amy K. Kirk, MSW, Coordinator of Family Services, Batten Disease Support and Research Association |
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