Complete List of Compassionate Allowances Conditions

Note: Conditions highlighted in Red are effective December 10, 2011.


1	Acute Leukemia
2	Adrenal Cancer - with distant metastases or inoperable, unresectable or recurrent
3	Alexander Disease (ALX) - Neonatal and Infantile
4	Alstrom Syndrome
5	Amegakaryocytic Thrombocytopenia
6	Amyotrophic Lateral Sclerosis (ALS)
7	Anaplastic Adrenal Cancer - with distant metastases or inoperable, unresectable or recurrent
8	Angelman Syndrome
9	Aortic Atresia
10	Astrocytoma - Grade III and IV
11	Ataxia Telangiectasia
12	Batten Disease
13	Bilateral Retinoblastoma
14	Bladder Cancer - with distant metastases or inoperable or unresectable
15	Bone Cancer - with distant metastases or inoperable or unresectable
16	Breast Cancer - with distant metastases or inoperable or unresectable
17	Canavan Disease (CD)
18	Cerebro Oculo Facio Skeletal (COFS) Syndrome
19	Chronic Myelogenous Leukemia (CML) - Blast Phase
20	Corticobasal Degeneration
21	Creutzfeldt-Jakob Disease (CJD) - Adult
22	Cri du Chat Syndrome
23	Degos Disease, Systemic
24	Early-Onset Alzheimer’s Disease
25	Edwards Syndrome (Trisomy 18)
26	Eisenmenger Syndrome
27	Endomyocardial Fibrosis
28	Ependymoblastoma (Child Brain Tumor)
29	Esophageal Cancer
30	Farber's Disease (FD) - Infantile
31	Fibrodysplasia Ossificans Progressiva
32	Friedreichs Ataxia (FRDA)
33	Frontotemporal Dementia (FTD), Picks Disease -Type A - Adult
34	Fukuyama Congenital Muscular Dystrophy
35	Gallbladder Cancer
36	Gaucher Disease (GD) - Type 2
37	Glioblastoma Multiforme (Adult Brain Tumor)
38	Glutaric Acidemia Type II (Neonatal)
39	Head and Neck Cancers - with distant metastasis or inoperable or uresectable
40	Heart Transplant Graft Failure
41	Heart Transplant Wait List, 1A/1B
42	Hemophagocytic Lymphohistiocytosis (HLH), Familial Type
43	Hypoplastic Left Heart Syndrome
44	Idiopathic Pulmonary Fibrosis
45	Infantile Neuroaxonal Dystrophy (INAD)
46	Infantile Neuronal Ceroid Lipofuscinoses
47	Inflammatory Breast Cancer (IBC)
48	Junctional Epidermolysis Bullosa, Lethal Type
49	Kidney Cancer - inoperable or unresectable
50	Krabbe Disease (KD) - Infantile
51	Large Intestine Cancer - with distant metastasis or inoperable, unresectable or recurrent
52	Late Infantile Neuronal Ceroid Lipofuscinoses
53	Left Ventricular Assist Device (LVAD) Recipient
54	Leigh’s Disease
55	Lesch-Nyhan Syndrome (LNS)
56	Lewy Body Dementia
57	Liver Cancer
58	Lowe Syndrome
59	Malignant Multiple Sclerosis
60	Mantle Cell Lymphoma (MCL)
61	Maple Syrup Urine Disease
62	Merosin Deficient Congenital Muscular Dystrophy
63	Metachromatic Leukodystrophy (MLD) - Late Infantile
64	Mitral Valve Atresia
65	Mixed Dementias
66	MPS I, formerly known as Hurler Syndrome
67	MPS II, formerly known as Hunter Syndrome
68	MPS III, formerly known as Sanfilippo Syndrome
69	Mucosal Malignant Melanoma
70	Multicentric Castleman Disease
71	Multiple System Atrophy
72	Neonatal Adrenoleukodystrophy
73	Niemann-Pick Disease (NPD) - Type A
74	Niemann-Pick Disease-Type C
75	Non-Small Cell Lung Cancer - with metastases to or beyond the hilar nodes or inoperable, unresectable or recurrent
76	Ornithine Transcarbamylase (OTC) Deficiency
77	Osteogenesis Imperfecta (OI) - Type II
78	Ovarian Cancer - with distant metastases or inoperable or unresectable
79	Pancreatic Cancer
80	Paraneoplastic Pemphigus
81	Patau Syndrome (Trisomy 13)
82	Peritoneal Mesothelioma
83	Pleural Mesothelioma
84	Pompe Disease - Infantile
85	Primary Cardiac Amyloidosis
86	Primary Central Nervous System Lymphoma
87	Primary Effusion Lymphoma
88	Primary Progressive Aphasia
89	Progressive Multifocal Leukoencephalopathy
90	Progressive Supranuclear Palsy
91	Pulmonary Atresia
92	Pulmonary Kaposi Sarcoma
93	Rett (RTT) Syndrome
94	Salivary Tumors
95	Sandhoff Disease
96	Single Ventricle
97	Small Cell Cancer (of the Large Intestine, Ovary, Prostate, or Uterus)
98	Small Cell Lung Cancer
99	Small Intestine Cancer - with distant metastases or inoperable, unresectable or recurrent
100	Spinal Muscular Atrophy (SMA) - Types 0 And 1
101	Spinocerebellar Ataxia
102	Stomach Cancer - with distant metastases or inoperable, unresectable or recurrent
103	Subacute Sclerosis Panencephalitis
104	Tay Sachs Disease - Infantile Type
105	Thanatophoric Dysplasia, Type 1
106	The ALS/Parkinsonism Dementia Complex
107	Thyroid Cancer
108	Tricuspid Atresia
109	Ullrich Congenital Muscular Dystrophy
110	Ureter Cancer - with distant metastases or inoperable, unresectable or recurrent
111	Walker Warburg Syndrome
112	Wolman Disease
113	Zellweger Syndrome


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